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This might explain the reticence that leads to the following appalling statistics from the most recent research from PAS on people with a Pernicious Anaemia diagnosis : 17% waited up to 1 year for correct diagnosis 19% waited 5 years 33% waited 5 years or more 4% waited 10 years 14% waited 10 years or more for their diagnosis 44% were originally misdiagnosed with MS/ depression/ ME/ Chronic Fatigue Syndrome The good news is that there is research being carried out that clearly shows a good reason why some of us cannot survive on the 3- month regime that many in the UK are stuck with (and having to resort to self-injection just to be able to stop deteriorating)- and the Pernicious Anaemia Society are responsible for initiating this research